Perfect Storm

A poem before AKATHISIA had a name


JAcW Photography(c)

The world doesn’t care, so you must. People closest can’t see the pain, the raging nightmare that is #AKATHISIA inside you. Even if they could, they don’t want to. It’s too terrifying and the demands are too great.


In case you’re wondering, yes. I think about giving up, every, single day. Giving up what? Infer what you will. But. I love Life. I loved it before, and I found ways to love it throughout, up until now.


And the moment you tell yourselves you’re all alone in this, whether true or perception, it becomes the most self-fulfilling prophecy you’ll create — and the most destructive.


Today, wallowing in my alone-ness, worrying I’m sick with #COVID* inflicted on me by someone close to me— despite #vaccination, despite extreme precautions since I’m high-risk — someone who sees the pain, knows the nightmare. Doesn’t matter, not really.


In the end, some things are unstoppable, others are not. It’s your job to figure out which is which.

So much of this, I hate to say it, is about our ability to walk through the fire because everyone has fire. I found out today that one of my favorite actors, Selma Blair, is living with multiple sclerosis.


She’s doing a wrenchingly candid film about it, hoping to show people her particular “human experience.”


Living with #AKATHISIA and other damage from prescribed medications is mine, yours, our human experience. Only being humane toward ourselves and each other will bring us closer to the edges of humanity.


That said, I tore myself out of bed and read the Times. I read about Lebanon. Much like my mother, telling me of starving children around the globe as a way to get me to appreciate my dinners, I urge all of those who have been harmed by #prescribedharm, disabled, suffered terrible loss, to read and get to know what’s happening in #Lebanon.


It changed my perspective and pulled me out of the darkness.


I wrote the following #poem (below) on July 7th, 2007. It’s an extremely bleak poem, but writing it pulled me from another dark place. That’s what writing, and reading, does. It extracts you from the terrible solitude, the isolation of #chronicpain, and affords you a different perspective, if you allow it, so you can trudge through another day.


Sometimes it helps to read about your own suffering through the words of a poet. I know there are those of you out there who hear my voice and resonate — that I sometimes write the words your own body screams. I want you to feel the truth of it — you’re not alone.


Charles #Bukowski wrote that ‘poetry happens when nothing else can.’


That was a deliberate choice for him and for me. A lot of other things can happen. I chose poetry then, I chose #compassion as I read about Lebanon. I choose life and #gratitude today. These aren’t banal platitudes coming from someone looking in the rear-view mirror at sickness and pain. I'm in the car with it.


But I’m trying to tell you — the way out of suffering is to suffer with your fellow wanderers. Do all you can to be with them, heart, soul, mind. Thanks to technology, a change of your own worldview is just a click away. Use this.


And so, that in mind, here is the poem that saved a single day for me over 14 years ago.


Peace out —


ja




Perfect Storm


-by J.A. Carter-Winward


Something broke inside of me. One might think it

began with hairline fissures found cascading through

my ribs, sternum, and fingers, but no — a pressure had


built, just behind my left eye, leaving it to see only

monochrome and shadow. A grinding torture in my


sternum, as if God himself was using my solar plexus

to put out his cigar. It’s been, for over 2 decades, a

relentless deluge, a surging tide, pushing its way through


me, salt and sand, like brittle glass shards — they were the first

wave. Each day, as I went through the motions, they


chipped away — malevolent, unrelenting — at my resolve.

Soon, all that remained was a mass of confusion and ruin

with no pain-free breaths to speak of. Then the winds


took their turn and time with me, gusts thrashing my spine,

my neck, curling my toes and buckling my knees. This typhoon


wound ‘round my guts, lungs, and my throbbing heart,

choking them silent, extracting useless information through my

threadbare voice. The squall carried my vitals down-


stream to be scattered with other rubble and remains.

When, finally, the small fissures emerged, then grew into


cracks — splitting my mind and vision, scoring my resistance,

shattering my will into shards. Like anyone seeking

redemption for my unknown sins, I sought a savior to


salvage the wreckage, repair the damage, but it was done.

Though the tide had ebbed, and the wind had died, I am


derelict, abandoned. Stories of past-grandeur won’t be told

because there are none. I’m an off-the-beaten-path relic, a

place for ghost hunters and schoolchildren, wandering home


on amber-October afternoons. Diffused light beams housing

dancing particles run through me, but I’m an eyesore. Drafty,


hollowed and dry-framed, but under this husk, find the beginnings of

decay. My rafters hang and creak on unsteady joints as the

sea and wind call past me through tall grasses. I shudder, stubborn


in my spot, surrounded by nothing. The only passage left for me is

fire — it could start from outside or within, but either way my frame is


kindling. All that was human, all that remained flesh and softness was

eaten away so long ago that nothing remains of who I was, who

I could have been. One day — I pray the shamans will come and


sing over my bones — they’ll dance on me, burning sage purifying.

They’ll shake their rattles, singing hallowed night songs,


summoning the souls of the long dead — protective spirits,

dancing their circle around lost hope, frail and distant dreams,

forgotten loves and memory. I ask only that they tear me


down utterly so no revenant remains howling through the

boards. Ripped to shreds, slat by slat, bone by bone, then


slip me gently into the earth’s cradling embrace. I ask for

forgiveness from their gods — for the sea and wind,

for they know not what they do and I’m no more their


victim than so many left broken and ravaged in the

wake of a storm, perfect in its brutal destruction.


I was simply in its path. And so my greatest hope is that

those left behind will speak in soft voices as they pick

through these remains and remember, remember —


the way those before them remember — hold

vigil for these events we long to forget. Tales of


torment and defeat, inflicted by wind and

sea, by land, by time, and the endless

gods of indifferent suffering.


-July 7th, 2007





*Originally posted on 10/16/2021 on medium.com/akathisia


UPDATE

Yesterday, after I posted on Medium, I went to get tested and it turns out, I tested NEGATIVE for COVID. Here's the thing. I had a fever, tender glands, sore throat, my chest felt heavy, throat tight, terrific fatigue, more so than usual, BUT. When that negative test beeped into my phone, guess what? Over the course of the evening and into this morning, my symptoms ebbed. And that, ladies and gents, has been something I've learned over the course of my life--the power our minds have to create our actual, physical realities. We can't beat a virus with the mind--but we can absolutely capitulate to what we believe is expected of us if we think we're sick. What does that say and what could that mean re: expectations, whether personal or societal, regarding mental illness?


Although I'm still terrifically fatigued, I'm ALWAYS terrifically fatigued. I have some sort of autoimmune d/o that just kicks my ass, every day, which is fun because "restlessness" would be a lot easier to handle if walking, pacing, moving, working out, jogging, were options.




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